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Ask HN: Pancreatic Cancer Resources

9 points by LinkPlug ↗ HN
This is still very new to us and I couldn't think of a better place to try to get a head start on beating this.

I hope when future hackers go searching for this on HN that they will find a list of the best resources.

Thank you :)

6 comments

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melling
Pancreatic cancer is a tough one. Try reading some stuff about Randy Pausch, who did the "Last Lecture"

http://www.cmu.edu/randyslecture/honor/index.html

Perhaps there are organizations or treatments that you will learn about.

Also, this PBS series on cancer was informative: http://www.pbs.org/show/story-cancer-emperor-all-maladies/

Think it might be on Netflix. It's based on a best-selling book:

https://www.goodreads.com/book/show/7170627-the-emperor-of-a...

edwinespinosa09
Dealing with the diagnosis and treatments/surgery is indeed tough physically and psychologically.

Physically it's important to understand how to deal with things day to day. Article is on nutrition post-diagnosis from John Hopkins. http://pathology.jhu.edu/pancreas/TreatmentNutrition.php?are...

Psychologically the whole team (family/friends/practitioners) need to be on the same page and transparent. http://www.kevinmd.com/blog/2013/03/fine-balance-hope-cope-c...

Patrick Swayze had this condition and despite his prognosis filmed a movie and did his own stunts.

brudgers
My beloved is currently back in oncology. Her career has included working in hospice, geriatrics and alzheimer's.

The place to start irrespective of having pancreatic cancer or not is with a living will and an advanced health directive. Even if you're going to freeze your head, you'll likely benefit.

http://www.mayoclinic.org/healthy-lifestyle/consumer-health/...

Good luck.