This will probably be a trend for the years to come.
Completely embracing the "you are the product" approach by giving you a service for free while openly selling your data, and giving you a share of the money they make off your data, plus control as to who it is sold to.
Some potential issues: it could backfire if your data gets in the hands of the wrong company (health insurance) or the wrong people (targeted biological attack), and how to trust the data broker in not selling your data behind your back.
IF it's what you say, then we'll have to set up some form of education to make sure people do value their data correctly, and therefore, a re in a position to negotiate with that sort of businesses.
Each time a my genome data contributes to one pill to improve the life one person, I want price of the pill P divided by number N of genomes used, divided by 100, so P/(100*N) euro on each pill sold, for my whole life.
I like the idea. The other day I thought of whether it would be possible to create drug company around this premise: select a drug for a chronic illness, when that drug’s patent expires, structure a company around producing that drug for a low enough price point that you can at least break even running a company that employees people and manufactures that drug. Now if prices low enough so that it undercuts competitors and is not a financial burden to patients, you have a monopoly with a real market and one that gets increased based upon the frequency of expression (if genetically based). If you can price the drug just enough to then fund a research and development department, then maybe you have an interesting business. I thought then, could you “donate” the company to the public, almost making it a public utility.
"probably anywhere from $10 to $10,000, if you're some exceptional research resource,"
As someone who has tried to sell things which actually functions to genomics and drug companies, this is ... optimistic. Ridiculous is probably a better word. There's probably something else going on here.
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[ 3.0 ms ] story [ 20.3 ms ] threadCompletely embracing the "you are the product" approach by giving you a service for free while openly selling your data, and giving you a share of the money they make off your data, plus control as to who it is sold to.
Some potential issues: it could backfire if your data gets in the hands of the wrong company (health insurance) or the wrong people (targeted biological attack), and how to trust the data broker in not selling your data behind your back.
Each time a my genome data contributes to one pill to improve the life one person, I want price of the pill P divided by number N of genomes used, divided by 100, so P/(100*N) euro on each pill sold, for my whole life.
I like the idea. The other day I thought of whether it would be possible to create drug company around this premise: select a drug for a chronic illness, when that drug’s patent expires, structure a company around producing that drug for a low enough price point that you can at least break even running a company that employees people and manufactures that drug. Now if prices low enough so that it undercuts competitors and is not a financial burden to patients, you have a monopoly with a real market and one that gets increased based upon the frequency of expression (if genetically based). If you can price the drug just enough to then fund a research and development department, then maybe you have an interesting business. I thought then, could you “donate” the company to the public, almost making it a public utility.
As someone who has tried to sell things which actually functions to genomics and drug companies, this is ... optimistic. Ridiculous is probably a better word. There's probably something else going on here.