I'm at high risk for diabetes, but not diabetic. (Yet, anyhow.) I put that up front because it may be the reason, but...
I really don't get what you guys are doing. We have treatments, understanding, and even laws to help people who suffer from Diabetes, yet you are saying it's not done right... And I still have no idea how that's supposed to be different from the current state.
I can't figure out why (if I suffered from diabetes) I would care about your product?
The reason it is not "done right" is because it is really hard to do right with the existing tools. Diabetes is a bitch. 5+ blood samples a day, 4+ insulin injections per day, every day. You can't ever miss one. Hungover? Too bad. Sick? Double the tests. If you miss one you either pass out (low) or feel like crap (high). Anything that can help with the regimen is appreciated. I'm looking forward to what they have to say.
So much in this disease is a question of behavior – measure enough, note changes, learn, adapt, adjust, measure, estimate. Rinse and repeat.
Testing is vital.
Behavior and a willingness/ability to learn/adapt is vital.
25% of us are clinically depressed. Lugging this thing around in the back of your mind, all the time, is taxing.
Through the years the therapy for diabetes mellitus type 1 has become more and more data driven. You work with algorithms and calculate what you do. You replace the sensor/reaction function of your busted pancreas (this is type 1 here, not t2) by calculating and measuring.
I've been diabetic myself since 27 years and have suffered from most crap you can think of. Including three years of diabetic burnout.
We will do our best to help.
Thanks for your comment!
OT: Just realized today, that my son is now as old as I was as I was diagnosed. Immense respect for what you have to deal with peterb.
Being diabetic is a very high maintanence, and to really control it you have to go above and beyond what the doctors tell you to do.
By collecting and then analysing things like insulin doses and blood sugars, one can indentify patterns and hopefully correct anything that is not as it should be.
Collecting and analysing information is tedious, and that is where I imagine they want to help (see also www.sugarstats.com). I think that if they can make both the collection and analysis easier and hopefully more fun, then it will make it a lot easier for people who are trying to better control their diabetes.
To answer your first point, it is not that understanding or treatment is lacking, just that the more data and patterns you have, the better you can apply the treatments, ultimately improving your prospects.
I, too, am at a high risk- I've seen members of my family slowly move from "abnormal fasting blood sugar" to "type 2 diabetic" over the span of a decade.
What I'm working on for myself is a set of scripts to take all the data I have about my diet and my blood glucose and making a chart of blood sugar fluctuation. Think fitday+ blood glucose readings + gnuplot. I'm using it to figure out what exactly is driving changes in BG levels.
I think that there's a great amount of insight to be had if OP can aggregate a few thousand, or 10's of thousands users diet and blood sugar readings, specially when the users are at the cusp of "abnormal blood sugar" and "full blow diabetes".
Sad to hear mate – sometimes I'm happy I'm t1 myself, not t2.
I worked a research project back at the uni, where we set up an analysis tool for diabetics. The amount of data was a sore lack for researchers. You can hook up w/ roche et al, they have the data but it's kinda locked up.
Lemme know how you come along with the visualization and concept! @fdebong or fd at mysugr dot com.
21 comments
[ 2.6 ms ] story [ 60.1 ms ] threadFeedback is welcome – concept, landingpage……
Still have to keep it a tad stealthy and obscure. Sorry.
Can also reg for newsletter at the bottom of the page.
Will keep you up to date if you wish.
Thanks for your comment!
I really don't get what you guys are doing. We have treatments, understanding, and even laws to help people who suffer from Diabetes, yet you are saying it's not done right... And I still have no idea how that's supposed to be different from the current state.
I can't figure out why (if I suffered from diabetes) I would care about your product?
My son is diabetic.
What I meant was that their site claims to solve something, but not how or what. It looks like snake oil right now.
We won't sell snake oil nor camel milk ;)
So much in this disease is a question of behavior – measure enough, note changes, learn, adapt, adjust, measure, estimate. Rinse and repeat.
Testing is vital.
Behavior and a willingness/ability to learn/adapt is vital.
25% of us are clinically depressed. Lugging this thing around in the back of your mind, all the time, is taxing.
Through the years the therapy for diabetes mellitus type 1 has become more and more data driven. You work with algorithms and calculate what you do. You replace the sensor/reaction function of your busted pancreas (this is type 1 here, not t2) by calculating and measuring.
I've been diabetic myself since 27 years and have suffered from most crap you can think of. Including three years of diabetic burnout.
We will do our best to help.
Thanks for your comment!
OT: Just realized today, that my son is now as old as I was as I was diagnosed. Immense respect for what you have to deal with peterb.
By collecting and then analysing things like insulin doses and blood sugars, one can indentify patterns and hopefully correct anything that is not as it should be.
Collecting and analysing information is tedious, and that is where I imagine they want to help (see also www.sugarstats.com). I think that if they can make both the collection and analysis easier and hopefully more fun, then it will make it a lot easier for people who are trying to better control their diabetes.
To answer your first point, it is not that understanding or treatment is lacking, just that the more data and patterns you have, the better you can apply the treatments, ultimately improving your prospects.
What I'm working on for myself is a set of scripts to take all the data I have about my diet and my blood glucose and making a chart of blood sugar fluctuation. Think fitday+ blood glucose readings + gnuplot. I'm using it to figure out what exactly is driving changes in BG levels.
I'm aiming for a chart like the one here: http://www.phlaunt.com/diabetes/16422495.php
I think that there's a great amount of insight to be had if OP can aggregate a few thousand, or 10's of thousands users diet and blood sugar readings, specially when the users are at the cusp of "abnormal blood sugar" and "full blow diabetes".
I worked a research project back at the uni, where we set up an analysis tool for diabetics. The amount of data was a sore lack for researchers. You can hook up w/ roche et al, they have the data but it's kinda locked up.
Lemme know how you come along with the visualization and concept! @fdebong or fd at mysugr dot com.
Also, if you want to make an impact with a page in English, I would strongly recommend that you run it by a native speaker.
In particular:
> This we will take care of — by fixing the way how the daily therapy works.
Definitely not. Perhaps "We will take care of this - by fixing the way daily therapy works."
Thanks for pointing it out to me.
When will you be launching the trial?