Ask HN: How to navigate the world as a brain-damaged 17 year old?
I had a pretty clear plan: Apply to Oxbridge. Failing that, do a degree apprenticeship at GCHQ etc.
March last year my friend was attacked by bullies at school. I tried to help, I was kicked in the head multiple times. The perpetrators got away with it because of our pathetic "justice" system. I was off school for 6 months and I have post-concussion syndrome. I am now below average intelligence. I am constantly fatigued. I have constant headaches. When symptoms are particularly bad I can barely walk or process speech. When I've been able to rest for a extended period I feel almost like I used to, but everything degrades whenever I try to actually do something. My doctor has been helpful and sympathetic, but I am still waiting on specialist help via the NHS.
I am a year into my A levels. I have done nothing but study this year. I wake up, go to school, stay awake with caffeine tablets and strong painkillers, get home, revise, then sleep. It's the same at weekends. Studying is extremely difficult and I retain far less information. I optimise my time with Anki, spaced repetition, and Obsidian. Despite this effort, I had to drop an A level (further maths), which made my already infitesimal chance of Oxbridge zero, and I am barely staying afloat in other qualifications. My current A levels are maths, physics, and compsci.
I don't do much programming now, but when I do I'm significantly worse. The most noticeable difference is in my working memory; where previously I would just write something, I now become overwhelmed if I don't meticulously plan and break the problem up first.
I have no clue how to continue. At the current rate, I will get good enough grades to get into one of the local unis. I think I'd be OK with a computer science course, as I already know much of the content. However, I don't think I can do an apprenticeship or other form of inflexible work - I am not reliably awake, and I'm simply not that intelligent anymore. I plan to take a gap year whatever I do to get some rest.
I've considered trying to work as a freelancer running a software business (after A levels/degree), as that would hopefully allow for more flexibility regarding symptoms. However, I have absolutely no clue how I would go about doing that, or if it's a good option. I can do desktop or web dev, I know Python, Rust, and TS well.
I'm not really sure what I'm asking. Is the freelance idea a good one? I really don't know how to do things as someone who's motivated, and retains a lot of knowledge I learnt before my concussion, but struggles to learn new things and stay awake. I'd appreciate some advice.
112 comments
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Second, what medical help are you getting? Seek out professional advice on whatever condition you've got.
You seem like you're still brighter than most people in your cohort. Don't be disheartened. If you can code, there will be things for you to do.
But find out about your condition first, and worry about uni afterwards. It's not the end of the world taking some time out either, just to de-stress.
Neurofeedback has been suggested in this thread and I can get it privately here for about £2000, so I'm considering that. It's a lot of money but could have a very high ROI if it works. I'm also on a very long waitlist for hyperbaric oxygen therapy run by a charity. There's some limited evidence that it helps people heal.
I'm not brighter than most of my cohort, though my cohort is a pretty bright group of people. I'm just about keeping up through stubbornness and doing nothing but studying.
Compared to the average teenager my age - they'd probably get a better score on an IQ test, but I don't spend my time drinking and partying, and over the course of the year I've gotten my grades from Es to Bs, so I suppose I'm probably still a bit above average.
I will definitely be taking a gap year(s?) between A levels and uni.
Thank you.
I can't give much in terms of life advice, but maybe you'll find this video from Strange Parts interesting, a YouTuber who almost lost everything due to a head injury and got terrible advice from well-meaning medical professionals. I have No idea if this could possibly be useful, but I hate the idea that someone might be able to recover still but never gets the right help.
https://youtu.be/Gs790JOeN3Y
There's so many different kinds of head injuries, though, and I'm sure they are all very different. But, I still wish you best of luck in recovery.
The education system infuriates me. I go to a technical school, it's meant to be for intelligent, motivated people to learn in peace and safety. But because of our ban on new grammar schools, bullies were let in - had to be let in - and their actions taken for granted. People insist standards are high, but they're only high if it's someone with a history of being civilised doing something wrong. It's just expected that there are violent people who will fuck things up for everyone around them, and nothing is really done about it.
Problems with the NHS are not about the model, they're about the funding. The current government has defunded Public Health, has defunded social care, and has defunded the NHS. They've also made it harder for people to immigrate to the UK. These decisions have caused immense pressure on the NHS.
We already have a Euro-style insurance model for dentistry, and everyone agrees it doesn't work.
Supplements would likely help. B Complex (10-25mg for most B vitamins), magnesium, zinc, lutein (20mg) and fish oil are all good. Most of those, if not all, fight inflammation and help with recovery and fight fatigue.
Try doing crosswords and mental math. Both work your memory in different ways.
I recommend more rest for a few years.
Also, learn to fight back hard.
Bad advice, especially in UK and in OP's age bracket. The UK has a sharp rise in knife incidents, moreso at younger ages.
https://news.sky.com/story/fatal-stabbings-in-england-and-wa...
I went to a shitty unknown school in France but I got hired in Amazon as a new grad and have been working there for years now (in the UK since 2 years). I have constantly people from top companies reaching out to me with job offers.
Going straight for freelance or any type of work after A levels is simply a total waste and a terrible idea. Get your degree, get a decent job and start your freelance business on the side. Only go full time once you have enough work to sustain yourself.
The guy who runs the Strange Parts channel has a video about his recovery; https://www.youtube.com/watch?v=Gs790JOeN3Y
From what I've seen first hand a concussion like this needs time to heal. Your brain, the organ responsible for processing information, has been harmed and needs to heal.
The main thing you need is time, which you seem to be lacking severely. That is the part I would focus on first. I'm not familiar enough with the UK's educational system to tell you how, but if you know where you want to end up try to find a way that gives you more time (whether that means starting later or starting something else and then transferring).
So use this heads up you got at your advantage to negate what is happening to you right now, by taking the time to heal first. It will literally pay dividends of a lifetime.
I will be praying for you.
I've got three weeks left of this academic year, and since we've finished the content for the year I might take those three weeks out so I get 9 weeks of break before next year. Hopefully I can improve in that time.
I do not recommend freelancing, as it is likely to generate even more stress. From the options you mention, the local uni would be my choice: I didn't know how much I didn't know until I started CS, and I've never had anyone actually care about who gave me my degree.
Let yourself recover.
You're already asking for help, though HN may not be the ideal venue for this. Try to get into therapy (of whatever kind helps you the most).
Then, find two communities of people local to you.
The first, fellow programmers to continue to practice your craft alongside.
The second, people who do something with their bodies — dancing or rock climbing or basketball.
It may feel like the people at your school whom you would have expected to protect you have betrayed you. They have indeed failed you. It is tempting to hide away to be alone. It is tempting to only reach out to people on the internet who can at best offer superficial companionship. I ask you to resist that temptation.
There are still people who care even though they are human. In this moment what matters is that you find people to be beside you so that you still have a team. Few things are built alone. Many are built by building a team.
I had a lot of concussions as a kid; at one point I had three in a row the effectively zeroed out my short term memory. I had a task to memorize 5 paragraphs from some Shakespeare writing. Additionally, I was unable to do basic math in the timelines given for testing. Among those symptoms I'd also stopped eating and my childhood depression worsened. Things didn't look too good.
I went to cognitive neurotherapy done by Dr Jonathan Walker (https://www.neurotherapydallas.com/copy-of-about-1) in Dallas, TX. I was first given a brain scan to set a baseline and did months of EEG oriented games that targeted areas of my brain that were seemingly less active. At some point I had a small seizure while playing the games and the ease with which I played increased rapidly. Within a couple weeks I was able to memorize the lines I was required to and my math returned to functional levels. Check in to cognitive neurotherapy, as far as I know it's still experimental but it seemed to help me a lot. They also give it to war veterans with TBI (Traumatic brain injuries) at the VA.
Two lessons from my experience.
1) the brain is incredibly plastic and over time figures out how to get things done
2) intense practice of very simple activities leads to very surprising and dramatic rewards -- video games with a strong hand-eye coordination component vastly improved my dyspraxia (at my age, we're talking Pac Man in arcades!) and then I moved on to tai chi. Deliberate practice of very simple things seems to be powerfully transformative for people struggling with neurological issues in general.
I don't know how much it helps, but strong odds there is a future. The year between A Levels and university to give yourself time to heal before you go straight into the next thing is a great idea. I also imagine there's a ton of emotional fall out from your attack and that also takes time to heal.
Shit hand of cards. You sound like you're doing a good job of coping. Keep on going it will improve over time.
It's a setting you have to configure: https://www.androidcentral.com/apps-software/how-to-show-mor...
If you’re looking for ideas about how to recover from concussion damage they have a state of the art interest in the field.
GOOD LUCK!
What careers did you pursue?
Co-invented the world’s fastest voxel renderer in 1993
Paid for a year in digital currency… in 1999
Pioneered content management systems for really hairy databases in the early 2000s. One of those projects is still going.
Went into energy policy after 9/11. Editorial team for the Pentagon’s study on the future strategic significance of oil.
Cryptographic design work for the US Office of the Secretary of Defence around 2008
World class work on worst case scenario pandemics and sheltering people after nuclear terrorism around then too.
Project managed the Ethereum launch in 2015.
But the really interesting stuff is http://myhopeforthe.world
I’ve kept busy. :)
Not bad for a man who couldn’t write until 17
Changing the subject you say, "When I've been able to rest for a extended period I feel almost like I used to, but everything degrades whenever I try to actually do something". People recovering from CFS or long Covid are (I think) given explicit advice to not push yourself because you will stay broken. I'm really sorry because that advice is not compatible with A levels study and the expectations that you have of what you _should_ be able to achieve.
Good luck
Existing in a team environment, with hopefully support and compassion, may be better for you while your recover, and you'll gain professional insights you don't get when working by yourself.
But something quite traumatic has happened to you
Those symptoms you are experiencing could be your body trying to protect yourself
It sounds like you're trying to ignore those signals with caffeine tablets and other bypasses
If I was in your position I would start trying to figure out when you experience disregularation so you can notice it
I'd also be thinking about grieving for yourself and trying to process those signals your body is telling you
This is not an easy thing to do
Also, like others said, don't write yourself off. Your injury may need time to heal and you may be back sooner than you think. Try everything not to burn out until then.
1. Your value in life does not depend on any academic or other accomplishments. There are many people I respect that are not what you would call accomplished. Your brain damage may have changed you, but if I knew you in real life, I would not respect you less -- I would likely respect you more, because you sound like a fighter. That being said, choose your battles and try to find the path of least resistance.
2. Regarding universities, a lot of professors are happy to make accommodations. Communication is everything. You have shown spirit, and people rightfully respect that, because it's not all about how much code or papers or whatever other metric you can bash out. It's all about real life issues you are motivated to work on, and you will notice that when you get to a stage where writing letters is more important than grades. I don't know if that is already the case to some degree for Oxbridge for undergrads. The only advise I can give you regarding that is reach out, and reach out early. Your case is fairly unique, and if you can find an office or some other advocate for you inside universities, it could benefit you a lot for to reach your goals.