Ask HN: Has anyone gotten complete, permanent relief from tinnitus?
As far as I can tell, there's no universally accepted "cure" for tinnitus, but there are a number of "therapies" out there, some of which seem to prey upon people looking for relief but some of which seem plausible.
I'm wondering if any subscribers here have had tinnitus and experience permanent relief from the ringing? Not just reduction, but actual permanent relief that never comes back even when doing things that previously worsened the tinnitus.
If you can't tell, I'm trying to establish an "existence proof" here, if no one has ever gotten permanent relief then it seems like it might not be worth bothering with the "symptom reduction" therapies since they would most likely lead to focusing on the symptoms more intensely.
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[ 4.4 ms ] story [ 328 ms ] threadThe solution that worked for my was basically “acceptance and commitment therapy” - I think I learned it from a book written by a Dr Russell or something like that.
Would recommend, am very glad I did it. It seems kind of kooky though, it’s almost like you pretend the tinnitus is a part of you and you have a conversation with it and welcome it and all that kinda stuff over time, and then eventually it just kinda stops being bothersome. Doesn’t really make sense, but worked well.
It's not too kooky nowadays, it's a relatively widely practiced approach used by clinical psychologists.
One thing I tried as I was still anxious about the matter that I had damaged my hearing permanently, was sitting in a pressurized chamber with a lot of oxygen. Ridiculously expensive and did basically nothing. Possibly if you go immediately after it happens it might help but I'm doubtful of its benefits (the company was making a buck though as single-person business).
I just remember this lady who had hit a garbage can's lid too hard which had made her ears ring. How unlucky. She was quite stressed about it as well.
I've had some curiousity from time to time, but that's the extent of it.
I truly believe acceptance is the best cure when no cure exists in this case, but it's also the most difficult method in all aspects of life.
So in a practical sense, worrying about it literally made it worse by triggering those stress reactions which worsened the tinnitus.
It's that mechanism that acceptance helps me with.
I am not always accepting, but if I can calm myself down and just deal with it, it lessens drastically.
The 'ringing' sound people hear isn't actually a sound. It is how the brain processes signals produced by damaged Stereocilia.
If the 'ringing' is constant it means the cilia are permanently damaged. While it would, in theory, be possible to use surgery on the ear and some sort of lazer to completely remove all damaged cilia to avoid them outputting a damaged signal, this procedure would be incredibly invasive and risky. I don't believe it's ever been done and i would find it hard to believe any Otolaryngologist willing to try.
This is a question for everyone I suppose, but does anyone know why that works? Could it be possible to develop an implant or something which generates the same effect?
I had assumed this was incurable but if my tinnitus is from tight neck muscles, that seems fixable. I'm going to reach out to my doctor about this. Thank you, I think you might have just greatly improved my life.
I also have tinnitus. I wonder if it’s all related?
Sometimes it is, apparently?
"If you have pulsatile tinnitus, your doctor may be able to hear your tinnitus when he or she does an examination (objective tinnitus)."
https://www.mayoclinic.org/diseases-conditions/tinnitus/symp...
It sounds like what we need is nanobots to do this surgery.
My wife has a friend who told her just a few days ago that her husband has had some success toning his done by chewing Bay leaves. I've not tried that yet, but I will soon.
From what I've read there is still no "cure". But those two things may contain a clue that's worth looking for.
obviously time to get approved/confirm it works - etc lies ahead.
other than that - i had taken up drums and was paranoid of tinnitus, i could hear ringing etc. once i got audiologist confirmation my hearing was 20/20 guess what? It went away. Anxiety levels can affect it...obviously it was mild for me - chronic sufferers wont get away with "dont worry about it and it will go away".
it’s possible you didn’t go to an audiologist.
(/s)
My latest audiologist test was in an opticians
I might as well note that anecdotally, barotrauma makes the tinnitus better temporarily. Maybe there is an explanation -- traumatic tinnitus can be at least alleviated by going into an overpressurization chamber immediately after the traumatic event. It seems like even after the fact, a pressure difference has temporary effect. For example, my tinnitus feels better after ascend on flights, even though in this case it's underpressure.
The best motivational video that I still think of after 10 years is this: https://youtu.be/eOU0JhkHY3w
I've spent a lot of time on PubMed, but so far I've not found anything that helps mine, even partially or temporarily. I've consulted with close friends that have significant expertise is relevant fields, which has not been fruitful.
Thankfully it's just part of existence as I've always known it, and so it's usually not too difficult, but can really be maddening when trying to fall asleep.
does white noise help?..
I'd recommend anyone suffering play around with the generators on myNoise. It wouldn't be an exaggeration to say they kept me going when I was first adjusting to the ringing.
https://mynoise.net/NoiseMachines/rainNoiseGenerator.php
Unless I put the white noise very loud to drwon out tinnitus which is not a good thing to do.
There’s a Lenire provider where I live (Austin) and I’m on the fence about scheduling an appointment to get one.
[1] https://treblehealth.com/lenire-tinnitus-review/
Your link lists all kinds of information about the effectiveness like:
> 80% of participants reported a reduction in tinnitus symptoms
That doesn't sound like snake oil to me...
I'd love to hear from somebody who has tried it. If they say it helped at all, I'd write a $5000 check today.
[1]: https://www.accessdata.fda.gov/cdrh_docs/pdf21/DEN210033.pdf
https://pubmed.ncbi.nlm.nih.gov/35773272/
> Several of the authors have competing interests. BC, CH, EM, SLL, COC, SH, HHL are employees, consultants and/or shareholders of Neuromod Devices. BL, SV, DAH serve on the clinical advisory board of Neuromod Devices and receive monetary compensation for their contribution.
Mind you, ice cold water, not just cold water.
It sounds interesting! Not as a tinnitus relief, just the practice of doing this.
The first days of doing that, you will go right to sleep after the cold water and you gonna wake up with a heavy head, like drinking whisky the previous night. After some days it won't be like that, and the body will get used to it.
Thanks!
I found out accidentally, that it treated a very mild case of inflammation in the ear i had, for over a year.
I probably had the same inflammation 6 years back, and i was in a lot of pain. I went to see a doctor, and he didn't want to prescribe any antibiotics, because the antibiotics for the ear are the strongest of all, due to poor blood circulation around the ear. Anyway, i convinced him for the contrary and he prescribed the antibiotics, 3 days later my ears were working properly again.
The last year however, a similar inflammation on the same spot appeared, but very mild. Almost no pain at all. Just a very small discomfort in the area sometimes. Well the ice cold water for an hour, it treats it completely every time.
The reason i am doing it however, is to smooth out the skin. That's a lot more important.
It also clears up the nasal pathways. Not absolutely, but it is one of the better ways i have found so far.
I had rapid onset tinnitus (8/10 volume, both ears) a week after sustaining a mild neck injury. After a couple weeks the right ear resolved itself, but the left ear remained at 4/10. In reading the literature about whiplash, it appears that upwards of 75% of people that have whiplash develop some form of tinnitus, hearing loss, and/or vertigo in the weeks or months following the injury.
I went to a CFMT-certified physical therapist who noticed that two of my vertebrae were counter-rotated and sheared in addition to my left first rib being elevated and stiff creating an almost thoracic-outlet syndrome type of issue.
My PT addressed the neck vertebrae issue and the elevated first rib over the course of a couple of sessions and my tinnitus dropped to a 0-1/10 in the left ear. If I'm careless when lifting weights it can cause the tinnitus to flare to a 2-3/10 for a couple of days.
Red wine also creates some sort of inflammation that causes my tinnitus to flare up, but alcohol (excessive alcohol in particular) in general causes that and it precedes my neck injury.
Nope. Had it since my earliest memories, no known trauma as a child.
I saw two different physiatrists, a neurologist, two ENTs, an audiologist, and my GP about the sudden onset tinnitus and they all just shrugged it off. I had a hunch something was going on with my neck because I could modulate the tinnitus a bit with the position of my neck and jaw--I shared this with all of them and they said I was being neurotic. It wasn't until I saw a good PT (she was the third different one I saw) that I was able to get this addressed.
Perhaps the most notable attempt at a cure was Frequency Therapeutics, whose efforts were promising, but unfortunately didn't pan out.
There's a constant churn of biotech companies trying to solve this, as curing tinnitus (and/or hearing loss) would be a goldmine, but no one has really gotten anywhere yet.
If you want to stay on top of it, the /r/tinnitusresearch is a pretty good hub, and there are a few mailing lists out there.
That said, over time I found that ceasing to follow all the promises and inevitable disappointments helped me better achieve the only real "treatment" we have right now, which is accepting it and slowly learning to live with it.
When there's a real deal cure, you'll know about it. Until then, I suggest not paying attention to the churn and the extremely dubious "treatments" out there.
I read about the Frequency Therapeutics stuff, and saw the initial promise and subsequent disappointment. Oh well, maybe next year :)
> The plant also seems to tone the brain circulation, which makes it interesting for cognitive or tinnitus problems due to poor circulation.
https://aromaplantes.com/en/herbal-medecine/177-monarda-orga...
It seems to work similarly to Ginkgo Biloba for tinnitus.
Will I get the same effect drinking Earl Grey tea?
I'm not convinced it's an entirely physical issue though. Our brains can filter out all kinds of excessive external stimuli both visual and from other senses so why not that ringing also?
This is a line in the film Children of Men (highly recommended), can't remember if it's in the book but either way it isn't correct.
Either way temporary exposure can cause temporary issues, once it's permanent though it seems irreversible for now
Had overpressure therapy in the weeks/months after but didn't help. Have a bone anchored heading aid (via implanted screw) but doesn't work well.
Learned to live with it but mostly terrified if something will happen to my other ear... still have a few decades to go I hope, so better hold on to the hearing I have or science better hurry up
https://www.sciencedaily.com/releases/2023/06/230605181219.h...
https://www.tinnitustalk.com/threads/new-university-of-michi...
Apparently it's in the process of being commercialised in the US.
There's some mediation treatment somewhat similar to the mirror box used to help amputees with phantom limb pain. It's all still early but something to look into further.
However, when I received the second dose of the Pfizer mRNA vaccine in 2021, within a day I had a substantial increase in tinnitus in both ears, particularly my right. I also had a persistent sensation of "fullness" in my right ear.
I went to an ENT. They were pretty skeptical of the connection to the vaccine, said they couldn't see anything physically wrong with my ears, but we had a good conversation about tinnitus in general. They told me there wasn't much anyone could do, but anecdotally, they did think that many of their patients reported actual improvement from an OTC nutritional supplement, "Lipo-flavonoid", specifically marketed for tinnitus.
https://www.amazon.com/Lipo-Flavonoid-Supplement-Recommended...
I ordered a bottle and tried it out, and sure enough, I do think it made a difference - it did seem to quiet down the tinnitus, but not back to the level I was used to.
After about 2 months the tinnitus and sensation of fullness faded.
I elected not to get the booster.
Best of luck to you. I do suggest giving this supplement a try.
For those of you skeptical about any connection to the covid vaccines, you might find this article interesting quoting the Editor-in-Chief of the journal VACCINE and head of vaccine research at Mayo Clinic. https://www.upi.com/Health_News/2022/08/08/tinnitus-widespre...
I’d say I get a bad cold once or twice a year and rarely experience anything more severe than that.
Perhaps you could do an experiment on yourself with the supplement to figure out if it's really having an effect or just placebo.
Most doctor visits were quite disappointing since they didn't do anything. I heard from many people that early therapy can help a lot (like oxygen therapy) but my doctor only tried some of these things after I repeatedly asked for it. But by that time it was already too late (like 3-4 weeks later).
What helped me was: - distraction - constant white noise in the background - avoiding any source of loud sounds/music/etc (I am very sensitive on that now) - relaxing my jaw muscles - distraction - going to the doctor at the earliest sign of possible ear infections to stop infections from spreading to the inner ear.
At that point I started to ignore it, and it works well enough. Except for when I am trying to fall asleep. I sometimes go by many weeks before I notice it.
https://www.youtube.com/watch?v=2yDCox-qKbk
Sudden hearing loss can be reversed with prompt steroid injections but if it's left then it will become permanent. My mother woke up one day with no hearing in one ear. Unfortunately, by the time she got a proper diagnosis it was too late to do anything about it. Since then she's had tinnitus and vertigo to go with it.
No idea if the long-term quiet environment played a role, but I also occasionally would supplement with sublingual b12[0] methylcobalamin supplements.
It's impossible to say what's responsible, there's far too many variables. Maybe just time passing since quitting riding motorcycles is all that was needed.
[0] https://en.wikipedia.org/wiki/Vitamin_B12_deficiency (search in page for tinnitus)
My tinnitus is a kind of hissing, predominantly at a very high pitch. I'm in my mid 40's so grew up around CRT TVs. I think it's about the 15kHz horizontal refresh frequency, which makes me wonder whether my brain was trained at a young age to expect CRT TV sounds to be around and now it's just a permanent artefact, like a noise cancellation circuit that's gone wrong.
I find it gets worse if I'm run down, or eg. If I drink too much alcohol, or if I wear headphones for too long.
If I think about it, I can hear it at any time, but generally it's not too bad. I know it's not very helpful, but acceptance of it and shifting focus to other things definitely helps me, to the point that it usually fades away and is generally not noticeable at all.
My hearing in general is fine, although I have always struggled a little with understanding people unless they’re facing me. I can hear them just fine, I just can’t always parse what they’re saying. Maybe related, maybe not.
I should be thankful at least because mine never bothers me. Like GP I thought this was something everyone experienced.