This site is currently unavailable to visitors from the European Economic Area while we work to ensure your data is protected in accordance with applicable EU laws."
It's gov regulation on memory and history. Pefect for those unwilling to take responsibility for their actions, or in that case, afraid to do so because their income depends on it. PR firms' dream. Antithetical to a free society.
Article 13 rests on the same short sight.
Sounds like you would rather they lie to you and just show the page? Surely you cant expect them to spend money on some foreign nation's laws. If so, just wait until China hears about it.
As (perhaps) obvious as this argument is, you will find a large part of US-based commenters claiming freedom-related limitations wilfully ignores skewed power relationships (or deny that they exist). Given that premise, what you see is not a view that will be shared by them.
We mostly accept power imbalances as a trade-off for more personal choice, and (often erroniously) assume they are temporary and teansient. Its obviously, not always optimal. But the whole "Those who would trade their freedom for security deserve neither" thing runs deep. I can't say I totally disagree, although our implementation clearly needs some work.
Alternatively: "there's so few of you that the cost of adding yet another set of laws to our compliance routine is greater than the revenue you'd generate".
Online publishing is low margin and this appears to be a local news station so it probably does make sense from a strict business perspective. I wouldn't be surprised if they're outsourcing compliance auditing and GDPR is a check box that cost money so they just chose to block instead. You don't need to assume questionable ethics when there's a perfectly ethical business case. Sure it would be nice if online news wasn't monetized with our data but that's not the world we live in you can't blame a local news station for not trying to be the ones to challenge the status quo.
Not exactly. It's an American company not trying to go to market in the EU; why would it invest in legal compliance with European regs? Even were the company to not store any data, there are lots of compliance steps which companies must take to _prove_ they are operating within the law. In these circumstances, it doesn't make sense to work on European compliance.
To be honest, I prefer this over the non GDRP-compliant "by the way, we're tracking you, cool?" notices that most sites seem to think is okay these days. Both lead to the site being immediately closed, but at least with the former I didn't "implicitly agree" to anything.
I'm generally not a fan of the EU (or bureaucracies in general) but it seems that with regards to digital legislation and rulings they tend to at least work with good intentions (at least imo). One can argue about the implementation but I generally applaud any afford towards more privacy. They get some credit from me because I consider the lack of software patents (with minor exceptions) one of the biggest European triumphs in recent history.
They are submitting an IND, which is great but they still have Phase 1, 2 and 3 to go. It's also a cell therapy so if it works, it's likely to be quite expensive to receive.
That said, if it works, it's a wonderful breakthrough that will hopefully spur others.
I'd be very happy if it turned out to be true but, for now, there are no real details (at least in the article) and there's quite a ways to go before it reaches approval. Best to see how this unfolds before jumping the gun with celebrations.
The posted title elevates the claims over the original article:
> Medical company believes they have the cure for HIV/AIDS
HK title (at time of posting):
> Maryland company files with FDA drug that cures AIDS
Ignoring the fact that the post title erroneously removed "HIV" it also made it misleading with the "cure" claim. Even the company themselves claim less than the title:
> we think our project may be able to do that.
So, yes, exciting drug trial. But let's hold off on proclaiming this has "cured" HIV/Aids until we're there.
Assuming this is a real cure for HIV, I’m curious what this will do to the HIV/AIDS charity industry. Would we still have “run for the cure”? Will red ribbons still mean AIDS?
The vast majority of charities for any illness are run by parents or the afflicted. They just get on with their lives.
Ask yourself, what did all the charities fighting polio, measles, etc. do when vaccines came out? They shuttered up the charities or moved on to other illnesses.
Pretty irresponsible way to frame this story, which is about a drug that has never touched a human patient. Lots of HIV/AIDS drugs or even “cures” have made it much farther than this.
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[ 3.8 ms ] story [ 97.9 ms ] threadThe site says:
"Our European visitors are important to us.
This site is currently unavailable to visitors from the European Economic Area while we work to ensure your data is protected in accordance with applicable EU laws."
"You can't use our services your government asked us to be considerate about your personal data, and you are not important enough to make that happen"
And now I can't learn about a life saving drug because of that law.
When you suppress freedom, people pay a price.
It's gov regulation on memory and history. Pefect for those unwilling to take responsibility for their actions, or in that case, afraid to do so because their income depends on it. PR firms' dream. Antithetical to a free society.
Article 13 rests on the same short sight.
Sounds like you would rather they lie to you and just show the page? Surely you cant expect them to spend money on some foreign nation's laws. If so, just wait until China hears about it.
Does the US have no laws that regulate how people should interact with each other?
Rhetorical question. Of course it does. So do you complain about that as well, or is it just the EU protection laws you dislike?
You forgot to add: "That's our job! Arrrrr! Flags! Bullets! Eagles!"
In fact that’s actually what they did.
Online publishing is low margin and this appears to be a local news station so it probably does make sense from a strict business perspective. I wouldn't be surprised if they're outsourcing compliance auditing and GDPR is a check box that cost money so they just chose to block instead. You don't need to assume questionable ethics when there's a perfectly ethical business case. Sure it would be nice if online news wasn't monetized with our data but that's not the world we live in you can't blame a local news station for not trying to be the ones to challenge the status quo.
If they've no interest in going "to market" in the EU, why lie about European visitors being valued?
What you've said isn't inaccurate, it's just not relevant to the message that Europeans are shown.
https://outline.com/KA3LDn
https://baltimore.cbslocal.com/2019/11/08/maryland-medical-c...
That said, if it works, it's a wonderful breakthrough that will hopefully spur others.
"Cures aids" is not the same thing by a long shot.
> Medical company believes they have the cure for HIV/AIDS
HK title (at time of posting):
> Maryland company files with FDA drug that cures AIDS
Ignoring the fact that the post title erroneously removed "HIV" it also made it misleading with the "cure" claim. Even the company themselves claim less than the title:
> we think our project may be able to do that.
So, yes, exciting drug trial. But let's hold off on proclaiming this has "cured" HIV/Aids until we're there.
But this is a gene therapy not a vaccine. It will cost $100k+ so accessibility will be a problem.
Ask yourself, what did all the charities fighting polio, measles, etc. do when vaccines came out? They shuttered up the charities or moved on to other illnesses.
It's a bit disingenuous to be talking about a "cure" before you've tried something in a single human being.