Ask HN: How did an adult ADHD diagnosis help you?

231 points by codpiece ↗ HN
My therapist wants to explore an ADHD diagnosis, run tests and dive deep. My question to you is; how did this help you or impact your life?

I am in the later half of an adventurous and successful career. I continue to grow, have a long-term stable marriage, good savings, great life. I went to my therapist to handle a lingering family issue and now we've come up to the ADHD talk.

They want to run neurological tests, said I'm 'twice exceptional' and I see this as an expensive and time consuming diversion of my goals. I do admit that there is some validity in the idea, I do see symptoms, but how would this help me at this point in my life?

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I've been on medication for about a week now and I've not thought about offing myself once since starting. That seems dramatic but honestly that used to be the default go-to answer for any problem that couldn't be resolved within a day or so. Seems a bit excessive of a response to problems now.. It really looks like my depression might be rooted in undiagnosed ADHD.

I can also if not properly focus on tasks at least force myself to finish whatever I'm working on before wandering off. I'm going to give it another week then ask for a bump on the dosage to see if that helps that one

Negatives:

Sweating a bunch, especially at night. Then again we are just about cruising into summer and in my old place I had aircon so that might be unrelated, but it is a possible side effect.

Appetite seems to have taken a hit too. While I am fully for that (I could lose a bit of weight no bother) I will keep an eye on it

Due to covid restrictions I've not been seen for talky therapy or anything yet, this is purely medicinal treatment currently but it's been a MASSIVE positive move for me

Medication helped a lot in the beginning, but what really helped in the long term was talk therapy, and setting up helpful systems and habits such as exercising, diet, journalling. But this would not have been possible without taking Ritalin in the first place. I'm mostly off-meds now.
I found the medication useful in interesting ways.

While on its effect, I've learn what it feels like to be focused, how ones mind works when in "not easily distracted mode", and I've very slowly learnt to apply some of these things even then not taking the medication.

This is a good point!

Stimulants are not always necessary long term, but they usually are to start effecting enough change to be able to function in the present society.

For some (me probably) it'll be a lifelong thing, but it definitely doesn't have to be for everyone!

I'm happy for your success!

I really wish I had access to more talk therapy, physiotherapy, guided relaxation, mindfullness'ish sessions, and some other forms of support. The medicine helps me to stay mostly functioning, but with talking to a therapist and practicing "basal body knowledge" I was feeling so much better!

I'll be starting the talk therapy side of things soon I believe! Bit of a lag on that due to covid etc.

I've already had some systems in place (if it's not in Todoist it's not getting done) but I was falling behind even my norm. If I can get to a point where I can function well enough without meds that will be brilliant, here's to hoping :)

Definitely try some of the alternate first-line medicines. For me, methylphenidate (Ritalin/Concerta in US) works wonders. Many people seem very happy with Strattera or Adderall.

My first few weeks were a rollercoaster, but the negative effects reduced significantly over time as I got used to the medicine and stabilised my dosage. And the positive effects are life-changing.

Ritalin (the UK version of anyway) is the one I've been put on yeah. Adderall equiv is on the table if this doesn't work but so far it seems to be the right track
ADHD meds (psychostimulants) are fast-acting anti depressants. I hope the regiment works out regardless of the underlying condition they're helping you manage, but just another perspective.
ADHD meds are definitely not antidepressants.

A sense of euphoria can be a side effect of early treatment, but that's not to be confused with an actual anti-depressant effect.

Some (unfortunately many) users get stuck chasing that initial sense of euphoria with continued dose escalation requests, or by playing games to only take doses on certain days of the week or even by doubling up doses on some days. This is a road you don't want to go down.

Stimulants do have an anti-depressant quality in a similar sense to SNRIs. They stimulate release of extracellular neural serotonin and norepinephrine (SNRIs block reuptake of serotonin and norepinephrine. Before the accidental discovery of the first front-line antidepressants in the 50s, they were prescribed for depression.

However, for the reasons you mentioned, they aren’t very good antidepressants. It’s easy to mistake the early euphoria of amphetamine for reduction in depression. Without careful management, it’s easier to become tolerant or even addicted to amphetamine.

Stimulants including Adderall have been formally trialed for depression treatment. They don't work.

Don't confuse the molecular mechanism of a drug for its eventual outcome. There is far more to a medication than binding affinities.

What studies? The information that I’ve found on PubMed and clinicaltrials.gov indicates that this is a poorly studied question, not a decided one.

A 2015 survey (Raymond Pary, MD, et al) found evidence that many psychostimulants were effective adjuncts for MDD and Bipolar depression. The results weren’t extraordinary but they were statistically significant. The authors noted in the results that the topic was generally poorly studied and double-blind clinical trials were limited.

In 2010-2011 Shire ran Phase II FDA trials on Vyvanse as an adjunct to traditional antidepressants for MDD with mediocre but also statistically significant positive results. Considering the age of most psychostimulants in use, that’s a fairly recent result from a clinical trial.

I certainly agree that psychostimulants are not a good choice to treat depression but that’s a far cry from “formally trialed for depression... don’t work”.

With the exception of MDMA, MDMA has show to have effective outcomes on depression and PTSD in short term studies. They problem is they have to be interleaved with SSRI's or the down state is far worse. That has been the issue with MDMA, it drops a depressed person lower than they where on the down ramp. Therefore there are concerns that it could place someone who was not suicidal in that low of a state. Studies have shown regulating this with SSRI's can mitigate the down state.
> or by playing games to only take doses on certain days of the week

This is something I’ve always done, under the close supervision of my doctor. I’m not sure if he initially recommended it or not, but it’s been extremely effective for me in terms of keeping my effective dosage low and limiting tolerance.

My prescribed dosage of Vyvanse stayed consistent for about a year after beginning taking it, but began to escalate after that. I didn’t like that and was resistant to continuing to increase it. I went from 40mg initially to 70mg at the highest. I’m back down to 50mg today and am able to keep it at that level by limiting taking it less often. I typically end up taking it 4-5 days per week.

There are significant long-term side effects of these medications - limiting tolerance building and keeping the effective dose as low as possible is a viable means of reducing the chance of experiencing them.

Why do you assert that this is a “road you don’t want to go down”? Is it merely because my reason for doing so is so different?

If they're also antidepressants why was I not taken off the antidepressants (citalopram) I was already on?
I'm not sure which med you are on, but I've been on adderall for about 12 years. Started during 1st year of a phd program.

In my experience with adderall... everything initially good about this particular Rx eventually fades away. Amphetamine makes you feel great. At the beginning really, really, great. It certainly helped me focus on whatever was in front of me, whether it was math homework or an iphone game. It became very important to ensure the right thing(s) were in front of me before taking meds (e.g. homework textbook or open IDE; not, for example, wikipedia, or email, or HN). Not getting enough sleep was the most acute negative effect of the meds. The battle for sleep continues to this day. The meds do suppress my appetite - they still do. It didn't help me lose as much weight as I'd hoped; turns out staring at a computer screen doesn't require a ton of calories.

These days I take as little Rx as possible, and I feel a lot better. I attribute a portion of this mood improvement to using a treadmill desk, which I started using ~2 years ago. I walk about 15-20 miles a day, while working (coding/writing/etc). I feel like it helps me focus, because I am "burning off" pent-up ADHD restlessness while working. And probably most helpful of all, I'm tired at the end of the day, so I fall asleep much easier.

With he sleep thing, I experienced the opposite. The ability to just lay down, decide to sleep, and sleep, combined with a bit of a chemical cue from the comedown really helped to regulate the insomnia I had struggled with since adolescence.
This was the biggest benefit for me.
Can you tell me more about your experience with selection, use, and pitfalls of treadmill desks?
Sure I have a few nuggets. I went through a couple cheap treadmills before I finally took the advice of another long-term treadmill desk user and bought a lifespan fitness:

https://www.lifespanfitness.com/workplace/treadmill-desks/tr...

It's an incredible sturdy and reliable treadmill. It has built in shock absorption and can autodetect your steps. Although I wear a clip-on fitbit to sync steps to my phone (wrist fitbit isnt going to work well to count steps since your hands will be typing or whatever).

I transitioned from a standing desk to a treadmill desk and was surprised that walking is actually much easier to sustain for long periods than standing. I started very slow. 1.2 mph. I gradually (and naturally) have made my way up to 2.4 mph.

If you get one, make sure to get good shoes! Something that a marathoner would use (e.g. Brooks, Asic, etc).

Getting a treadmill desk is among the best decisions I've ever made.

I was on Adderall for roughly 10 years, and it really didn't make me feel great. I tried taking larger doses when I was going through my 'experiment with all the new drugs' phase in high school, and didn't really get the euphoria I hear about. In general, Adderall in any dose makes me sweaty, smelly, and antisocial.

I hated taking it. Yet it would in fact improve my performance. For 3 years since my last filled prescription circa 2012 I had enough adderall to just take it whenever I felt like I 'needed it', which was rarely, because I hated taking it so much. Since I've run out, I do have issues with ADD still, but fortunately have been able to cope as an adult in my (now) 30s.

I do think having it on hand is really great for some people, but I don't think 'feeling great' is a unanimous experience.

I had a similar experience, but after the 1st year both the positives and negatives wore off (now it doesn't feel like I'm taking anything it just feels normal) and I was simply left with the ability to choose my focus (about 80%).

Now if I don't take my adderall on a given day I have trouble focusing and by midday I get pretty restless and antsy.

I may have been overenthusiastic in my wording. I don't feel great, I just don't feel shite now because I'm able to do the work instead of sit there stressing about it all day. My happiness balance was in the overdraft, it is now just above 0.

I'm on the one the US would call Ritalin. If indeed a tolerance does appear then that will be disappointing and I'll have to figure it out from there. Unfortunately I don't tend to get anything other than "I'm physically tired now" from exercise

Obviously different medications have different side effects, but I started taking fluoxetine (Prozac) over a year ago. The first 6-8 weeks were ROUGH. The mood swings were unbearable. It did even out after that and I’m stable now. The night sweats are real though, it’s annoying. My room can be 65° F and I’ll still get them.
What are the symptoms of adult ADHD?
The same as in a child, except you can identify them yourself because you've gained the experience of life.
> how would this help me...

File this under Know Thyself.

You may not actually need the professional diagnosis to confirm this hunch. Moving forward, assume it’s likely true.

Incidentally, Peter Shankman has an excellent podcast where he interviews people with ADHD from all walks of life. > https://www.fasterthannormal.com/a-special-love-w-shauna-dan...

You may need the diagnosis if you want to start medication. If you don't care about medication it might be nice to know what you're suffering from (if you're suffering from it), and how this may impact your life and that of the people around you.
> I went to my therapist to handle a lingering family issue and now we've come up to the ADHD talk

Ditch your therapist.

(comment deleted)
That sounds like a very unhelpful response. People with ADHD are known to suffer much higher rates of divorce, because ADHD is largely emotional dis-regulation.

ADHD is often ignored in 'high-functioning' adults who present with anxiety, depression, and relationship issues but it is often the root-cause of these problems.

If a therapist suggest at least exploring ADHD then assume they have very good reason to do so!

There could be consequences, btw. Like being barred from getting a pilots license in US if you'd ever acquire a taste for flying for example.
+1. If you're doing well & aren't curious to try prescription drugs, don't get diagnosed. Live your life, no need to bother being classified somewhere in the non-NT taxonomy where if you're not acting weird in the same way as everyone else you need to be labelled with your brain put in the appropriate cupboard of mason jars
Late 30’s diagnosis for ADHD, who went to school to fly in college. Here’s my hot take:

Being barred from a pilots license is a good thing.

I look back on that time, and I’m shocked I didn’t crash the damned aircraft. I couldn’t focus when landing (executive focus disfunction), I would freak out randomly (emotional disregulation), and I gave at least one of my instructors several grey hairs when landing.

When you’re a pilot, you can’t afford to not be paying attention.

Same goes for operating a car. How many accidents are caused by distracted driving?

The good news is that medication may mitigates the symptoms so you can focus on driving or flying safely.

The bad news is the FAA says you can't use the medication while flying nor can you have an active diagnosis. So if you have ever been diagnosed with ADHD, even as a child, your only option is to go through an expensive testing process to prove you don't have ADHD anymore. Or some people just lie. Easiest and most dangerous approach is to never be diagnosed in the first place.

The FAA is rewarded for caution, not inclusivity. But they are making changes, like very recently making exceptions to allow diabetics to be pilots: https://www.diabetes.org/resources/know-your-rights/discrimi.... Just know that a diagnosis can never been deleted.

I got a diagnosis after two failed marriages, a stalled career, issues around emotional dysregulation and rejection sensitivity.

The diagnosis, and resulting treatment, changed my life.

Not sure it will help you given you don't seem to be suffering from it.

Thank you, I'm sorry to hear you've suffered.
Thanks! I shared my story so you could sort of contrast negative impacts of ADHD I experienced with your own situation (though there is lots of that here now :-).

I would suggest that, whatever you decide, you take the time to understand the impacts that ADHD can have on your friends, family and co-workers and check in with them to make sure you are not having more impact than you think.

No real help in many countries because Adderal and Desoxyn are completely illegal in the most. In fact the only thing that really helped me were small amounts of meth which is legally available (in the USA only) as Desoxyn. 1/4 Xanax + 1200mg piracetam combo also did nice job but every time I tried it Xanax felt having notably less effect. So, for some time, I settled with nicotine-heavy vape which made me at least slightly productive.
seeking diagnosis but seems very likely from professionals ive been assessed by.

just a note, i’m not looking for feedback or criticism of these things im experiencing.

accepting i might have adhd helped me in a few ways:

1. i could stop being quite so hard on myself for fucking up (usually organisational stuff)

2. i’ve started separating the parts of my identity i took on as an explanation for my needs (e.g low frustration threshold means i need minimalism and convenience). which is useful because now im starting to see what i “need” to function well and what i actually value.

3. ive started to build my life in ways that enable me to overcome stuff. e.g i thought i was very introverted and need alone time (and it turns out i am and do) but i need things to help me engage with boring tasks and other people are so engaging. so now i try to book in time to pair on boring tasks.

5. i absolutely cannot live without a todo list and a calendar. of i do not write it down, it is gone. i can finally accept this and stop trying to get better at remembering things.

there are numerous other things too that i will likely think of / discover as time passes.

So my take maybe isn't the healthiest on this, not sure.

If you believe you have ADHD, and your therapist believes you have ADHD, BUT your life isn't negatively impacted by it, why start treatment now?

Ask yourself if you have any negative impacts from ADHD. Ask your spouse. Personal relationships, professional work, all aspects. If the answer is no, then why bother?

Source: ADHD treatments that left me a zombie when all I really needed was therapy and help to figure out realistic, functional coping mechanisms.

I concur, and I think OP has the answer already. I went to a psychiatrist (diagnosed at age 34) because of significant problems that were getting in the way of life, but if that's not the case for you then there is no justification for the time and expense of treatment.
That's the healthiest take. Severity of any disorder is a function of its effect on the person and the person's social and life function. If these are minimal and minimal, IMO pursuing medication is really not warranted.
As someone who has found ADHD medication to be hugely beneficial, I completely agree with you. Treatment has its tradeoffs. In general, stimulants greatly improve my quality of life. But at the same time, they can wreck my appetite and make me prone to anxiety and irritability. And dealing with the bureaucracy of scheduled medications is a serious headache. If someone is happy with their life and their symptoms aren't negatively impacting them, then what's the point?
ADHD impacts my life very much, but I was diagnosed as an adult. I honestly have no idea how I operated pre-diagnosis (and pre-medication). I think about some of the struggles I went through (e.g. my entire educational experience or my entire experience as a founder) and I really suffered in those times.

However, I absolutely agree with you.

Daily stimulants are a frustrating balancing act. Anti-depressants have frustrating side-effects. If I operated well without either or both, I would drop them in a hot second.

I DO benefit from medication to a degree that it has vastly improved my quality of life. I also benefit from therapy and the development of coping tools — in fact, I think anyone who benefits from medication should also seek therapy because it’s SO helpful.

This isn’t really a counterpoint to your experience, but more of a companion-point. Your post doesn’t make me think that you are an irrationally anti-pill person or anything like that. I’m just reinforcing what you’ve implied: treatment isn’t one-size-fits-all (although, at least in America, the medical system sure tries to make it that way). It’s incredibly important for anyone with ADHD to find the right tools for them.

Thanks for your more nuanced take.
> If you believe you have ADHD, and your therapist believes you have ADHD, BUT your life isn't negatively impacted by it, why start treatment now?

If your life isn't negatively impacted by it then you might be hyperactive or have trouble paying attention, but you don't have ADHD, by definition. It only becomes a disorder when it's causing a significant ongoing negative impact on your life.

That's the crux of it right there. I've had a wonderful, wonderful life, a rewarding career, a 30 year marriage and raised intelligent, well-grounded kids. Not just by _my_ definition, but by those around me whom I respect.
On the one hand, it doesn't sound like any possible ADHD tendencies you might have are causing you much grief. Also remember that ADHD is hugely situational - I've had a pretty great career and up until a year or two ago I wouldn't have ever suspected I fit the bill. It was only during a perfect storm of overlapping stressors that I really felt like I was struggling.

On the other hand, just because you can survive doesn't mean life has to be this hard. And looking back I now realise that much of my life I was doing just that. I was surviving, when I could have been doing so much better.

I don't think you are correct. Just because the name has disorder in it does not mean you have to have a significant negative impact on your life.

It is a mental disorder. My brain functions differently than a normal functioning brain without ADHD. I have built my life in a way so that does not negatively impact my life significantly.

On the other side of this, I wasn't sure if my life was negatively impacted or not. I decided to try out medication to see, and my wife and I instantly started noticing improvements in our lives. I was getting more done with less mental strain, and there were tons of tiny little things that she wasn't having to remember for me or worry about because I wasn't losing track of them.

YMMV.

> Source: ADHD treatments that left me a zombie when all I really needed was therapy and help to figure out realistic, functional coping mechanisms.

A good psychiatrist will have you do all of the above.

It’s literally only a disorder if it interferes with your life. Otherwise, it’s not a disorder. Like, it’s in the definition.

https://www.cdc.gov/ncbddd/adhd/diagnosis.html

This is true of almost all of these disorders: no interference with life means not a disorder.

Saying “if you have no negative effects from ADHD” is the same as saying “if you’re alive when you’re dead”.

My personal experience with ADHD is that you are told it is a problem that needs medication, regardless of whether or not it impacts your life in a serious way.

Often, psychologists/psychiatrists/medical doctors will fail to include the literal definition of disorder. ADHD is one of those things that is a popular target for medications as a knee-jerk reaction.

That was sort of my point, I guess.

I think sometimes it’s hard to tell whether something is interfering or not. If you’ve been squeaking by your whole life you might think this is “normal” simply because you’ve never experienced actual normal.

I go back and forth with ADHD meds. I’d say every 18 months or so I decide to take a week or two off. Sometimes that break goes on for a while because I think everything is fine and dandy. I think the longest I was off medication since starting (as an adult) was about 18 months. I can sometimes get by okay without meds, and sometimes that’s my preferred course of action, but invariably when I start taking them again I “remember” what it’s like not to have a crippling inability to do exceedingly simple tasks. And honestly, it’s kind of nice. Much less mentally exhausting.

One of the DSM criteria is literally "There is clear evidence that the symptoms interfere with, or reduce the quality of, social, school, or work functioning." So if there isn't something being affected, you don't meet the diagnosis criteria.
I don't think treatment is always a necessary outcome, but awareness probably is. Medication helps with doing things, but if all you did was take medication, your family would still have no idea why you constantly lose your housekey or why you chronically show up late. Simply being able to establish that "these are things I'm not going to be good at" or something along those lines is an improvement.
I got it, got the medication (and it helped a ton). Then the next doctor said the last doctor was completely wrong. Now I have something completely different (and very different medication, which also helps but not quite in the same way). If you do get one I would urge you to carefully consider whether or not you want further investigation after that, especially if you're outside the norm mentally. Every new doctor you get will question every doctor you've ever had and want to redo everything, which takes a ton of time. Expect every doctor to add 12 months delay to whatever treatment you might to get.

That said, getting help at all if you have no other choice (i.e. you are objectively incapable of functioning) is a good idea. The real challenge lies in knowing when to call it a day :)

An adhd diagnosis helped me a lot in my late 20s.

I took Ritalin for a brief period and it opened my eyes to different ways of seeing things. I actually believe in Ritalin more than adhd diagnoses. But it stopped being effective for me after a while, and same for most people i know. Also, side effects. But getting perspective helped me change certain behaviors which were causing problems for me.

But honestly, and this is very forward to say, I would stop seeing this therapist. I have had similar experiences to you, where I try to go to a therapist for one thing, and they send me down some other road entirely. This has never been helpful. Generally it has been destructive. Therapists are like everyone else, in that many of them aren’t that good. And just like how a bad mechanic can cost you money and ruin your car, so can a bad or even mediocre therapist screw up your life. Seriously. Don’t be pushed into some random diagnosis by some therapist who has some idea in their head.

Thank you for articulating a concern I have.
I'd recommend everyone who thinks he or she has ADHD to keep in mind that there are clinics who literally make money by diagnosing you. So make sure you don't go to one of those. This is a problem, even in the Netherlands https://www.trouw.nl/zorg/in-de-adhd-fabriek-is-de-diagnose-... I wish I could find a translated version for you.

Anyways, Methlyphinidate (ritalin) should be your very LAST step. Before that, clean up your workspace, disable distracting apps on your phone and computer, use a site blocker... And consider that a lack of discipline is not caused by ADHD.

I speak with experience here, because I was "diagnosed" with this "mental illness" before it was cool, about two decades ago, when the teachers noted I couldn't pay attention in class. Took ritalin for about a decade. Always thought I had trouble concentrating, like I was told right? Well, a few years ago I rented an office space with a friend of mine, just the two of us in a very spacious (100m2), light and well-ventilated office. We received no phone calls, there were no people walking in, or cats and girlfriends asking for attention. I had less distractions than I had at home, and much less than in a traditional office. And it was a dedicated area for "work". A comfortable desk and chair, two monitors and a fast pc. Having worked in such a proper environment, I will never say I have trouble concentrating again.

Anyways, what exactly do you think you have to gain by being "diagnosed" with ADHD?

Yeah, if _things_ distract you easily, it's one thing. Notifications are DESIGNED to distract you, if they do, that's not an indicator of anything.

ADHD is more like "I was cooking dinner and got distracted by the idea of cleaning the toilet, so here I am buying new socks. Oh, the unfinished dinner is still on the counter."

Your example is a pretty extreme caricature; I suspect many of us are more familiar with the slower but broader version of this sequence where we gain and lose interest in careers/partners/lifestyles with alarming and exhausting frequency.
For some it's not a caricature. For me is how my life looks like without meds. But yeah, ADHD is probably a spectrum.
> Your example is a pretty extreme caricature;

It's a caricature? I've only recently learned that this is not something that everyone struggles with daily...

> our example is a pretty extreme caricature

Extreme, yes, but far from a caricature.

You should see my office. I’m constantly surrounded by unfinished projects - I either unmedicated and don’t have the ability to finish them because I’m distracted by other things, or I’m medicated and don’t have time to finish them because I’m trying to catch up with the things that I’ve neglected because I didn’t have the ability to prioritize them.

Wow, this is like a textbook example of how not to comment on ADHD.

1 - Ritalin is not the only treatment meted out to those with ADHD

2 - ADHD isn't an "excuse". If cleaning one's desk was the solution to it, we wouldn't be discussing it so much today - and it wouldn't be one of the most studied-conditions of all time.

It sounds like you actually have ADHD but can control it with the perfect environment. Others are not so lucky; either lacking the ability to create the perfect ADHD haven or that haven only working for a while before they relapse.

> Anyways, what exactly do you think you have to gain by being "diagnosed" with ADHD? Except for an "excuse" for your problems?

Please don't dismiss mental illness this way.

That was too harsh, sorry.
Apology accepted. Emotional responses are an ADHD symptom :-)
Hahaha as are breathing and requiring water to stay alive I think
> Anyways, what exactly do you think you have to gain by being "diagnosed" with ADHD? Except for an "excuse" for your problems?

For me it helped me realize that I not normal.

I excel at certain things (creative thinking, handling unexpected situations) and I'm hopeless at others (following through on plans that doesn't have to be acted on daily).

I have decided to not use it as an excuse and told my wife so so she doesn't feel sorry for me.

I've decided to exploit my disability for all that it is worth: I deal with tricky customers at work because it is easy for me, I wake up before certain others goes to bed etc etc. I am different and I not only accept it but actively enjoy it and take advantage of it.

Also I know I speak out more easily than others so I accept that I should raise my treshold for when to speak out.

My life has become better after doing this.

Oh, and not a bad word about Ritalin, but be aware that for some it works wonders, for others it has nasty side effects (muscle tension, weight loss) and also the exact brand and capsules makes a difference (yes, they are supposed to be identical but I guess it is something about the microbiome because I have seen it too many times no so.)

As a counterpoint, I was diagnosed with ADD (now known as ADHD-PI) a couple decades ago as a child and initially took medication for it, but complained about the effects and so my parents agreed to stop giving me medication. This kind of decision seems manageable at the time if you're bright enough that you can skate through school regardless of how much work you actually do.

You cannot skate through adulthood this way. My condition, ADHD-PI, is characterized by the tendency to lose focus on dull activities while hyper-focusing on fun activities. If my current task is interesting then I could work even with a rock concert held 5 feet away. This sounds like a superpower but if a task is not interesting then the slightest distraction totally derails me. There are ways for me to trick myself but they are unreliable and my brain will eventually route around them.

I do my best to always work on something interesting, but this isn't always possible and the productivity hit can be quite large. My solution was to get a prescription for Adderall XR. With the benefit of hindsight I regret ever going off medication. I don't think it's always necessary but if you have these problems, you've been diagnosed, and it's severe enough that you have become depressed (this is very common among adults with ADHD) you should really consider it.

lose focus on dull activities

This doesn't sound like a mental illness, but rather a part of the human condition, don't you think?

It all lies on a spectrum. No one likes doing something dull but with ADD it can become so intense as to be debilitating. You always procrastinate to the last second on everything, sometimes far past the last second. Left untreated you attain a reputation as a lazy flake and it affects your work, your relationships, etc.
Yes, and no. Yes, because people do get bored. No, because with ADHD, you can’t even force yourself to focus despite the boredom. Bribes, identification of potential consequences, punishment - none of these work.
> lose focus on dull activities

You mean like getting distracted while actively having sex by the way the light is filtering through the leaves outside my bedroom window?

How about missing half of what your spouse is saying to you because you suddenly remembered an insight you had about how relative speed and the perception of the passage of time are linked, thereby forming a universal constant connecting both?

… or maybe you mean not being able to remember anything you need while at the grocery store because instead you remembered you needed something from the auto parts store, and having to drive to the auto parts store and buy that thing because it completely fills your consciousness and makes you unable to think about what food you need for the week until you have it in your hand?

In all seriousness - whether an activity is “dull” or not has little bearing on whether I can focus on it. My focus is ephemeral, and feels like something completely out of my control most of the time. Medication gives me some ability to direct it.

I hear people talking about “not looking forward” to doing things. I can’t relate at all. I dread even the things I want to do, because I’m not sure if I’ll be able to do them.

I was diagnosed about a year ago (I'll be 34 tomorrow).

I went to the therapist to ~figure out if~ confirm that I was on the Autism spectrum, and they pointed out that it sounded like there was some ADHD too, so it was something very unexpected for me. In hindsight, very obvious too.

It's been very insightful. On the more personal side, it's helped me understand a lot about my life and why so many things went they way they went. It's now clear that some teachers were _hinting_ the issue at my parents in school, but they never picked up on that.

On a more practical side, medication has helped a lot in focusing better and work and alike. However, it IS a tool, and you need to learn to use it. Having ADHD is like aiming your attention at things with a shotgun, and medication turns that into a sniper -- you can direct your focus very well, but it takes some training to learn _how_ to do that.

It's also important to balance it out. I take far less on the weekends since that helps wind down a lot.

I came across this youtube channel recently which is pretty interesting. It's always useful to hear how others have dealt with the same struggles: https://www.youtube.com/channel/UC-nPM1_kSZf91ZGkcgy_95Q

“How to ADHD” is a fantastic resource. She’s honest, funny, and reaches out to professionals to make sure she isn’t fertilizing her audience.
Having a diagnosis gives you the option to try medication of several varieties that are not otherwise legally available to you in the US.

For some people the medications Just Work, with no negative side effects. If they do that for you it could be a big win, but one you can't safely or lawfully test without getting a diagnosis.

It also gives you a well-defined problem statement for tackling the "lingering family issue" and for communicating with your family about differences between your neurological wiring and theirs that all of you need to cope with, if you do come up with a diagnosis.

I'm fascinated.

> I am in the later half of an adventurous and successful career. I continue to grow, have a long-term stable marriage, good savings, great life.

This passage could describe me as well, but as I look back on high school and college I've become convinced that if I'd been born 10-15 years later I would have been diagnosed with ADD or ADHD (I don't know if the 'hyperactivity' part is a distinction psychologists make anymore.) I struggled in school but in an unusual way: I got As in some classes and Cs (or worse!) in others.

In school balancing my attention between more than three different classes was an impossible and mystifying task, but generating very intent focus on a few very interesting things was easy (e.g. programming, playing guitar). In college, I found myself dropping down to the minimum full-time course load often, and I envied my friends at schools on the quarter system who took only three classes at a time over shorter terms.

When I started working as a programmer, I found things much easier, had fewer things to divide my focus between, and could arrange my work (mostly) as I pleased, and I had a lot of success. I also discovered coffee, and looking at my coffee consumption over the years, one might reasonably conclude I'm self-medicating with stimulants. Even now, this XKCD resonates with me: https://xkcd.com/1106/

I'm moderately curious about whether I would be diagnosed, in the spirit of self-knowledge, but I don't feel the need to engage professional help to figure it out.

It's important to note that an ADHD diagnosis does not necessarily end with stimulant medication. Stimulant medication can be helpful for some people, but it's not the only way to treat ADHD. Having an ADHD diagnosis could help you choose appropriate therapy methods, self-help practices, and other self-improvement measures. Of course, an ADHD diagnosis isn't necessary to begin implementing better time management practices, so I'd suggest addressing any issues you might have with time management, time boxing, and organization whether or not you have an ADHD diagnosis.

When it comes to stimulant medication anecdotes, it's important to separate them by how long the person has been taking the medication. You'll get very different answers from people who have been taking stimulants for 1 month, 1 year, or 10 years. One of the side effects (key phrase: side effect) of the first few weeks or months of stimulant medication is a sense of euphoria and extra motivation. Be careful, because this effect fades with time.

In general, I'd recommend focusing on anecdotes from people who have been treated for at least 1 year or more, while taking any reports from someone who just started medication with a huge grain of salt. In particular, I'd recommend ignoring any reports from people who are taking excessively high doses of stimulants, dosing stimulants sporadically ("as needed" isn't standard practice), or who just started taking a stimulant medication. The realities of decades of prescription stimulant have pros and cons, which aren't apparent in the first few weeks or months.

Also beware that some psychiatrists greatly overdiagnose certain conditions. Unfortunately, some practitioners are known to overdiagnose their pet condition, from depression to ADHD to anxiety. If a practitioner is pushing you toward a diagnosis or treatment you don't feel comfortable with, don't hesitate to get a second opinion.

> It's important to note that an ADHD diagnosis does not necessarily end with stimulant medication. Stimulant medication can be helpful for some people, but it's not the only way to treat ADHD.

One may not need medication, but also don't be TOO reluctant to use medications. After my diagnosis, I fell back into the "Now that I know, I should be able to do this with will power and todo lists" trap and resisted medication for too long. Going on medication was, and is, life changing for me (16 months later).

The rest of your advice is dead on!

> It's important to note that an ADHD diagnosis does not necessarily end with stimulant medication

I expect this is truer for adults, as they have agency over the matter. Children don't get a choice.

> dosing stimulants sporadically ("as needed" isn't standard practice),

Interesting, I take adderall "as needed" and my doctor is fine with it. He prescribed it for daily use but said I can take it as needed.

My doctor actually prescribes a regime of holidays from the stimulants. It is becoming a fairly common practice.
I am medicated for ADHD, and my goal is to one day get off the meds, maybe in 5-10 years. Sounds like you've been functioning pretty well without them, which is a great reason NOT to start.

Have you gotten any encouragement from people in your life to investigate ADHD, or is it just this therapist? I was encouraged by teachers and loved ones to look into it starting in grade 2, finally got a diagnosis about 5 years back.

The therapist, really. Kind of came out of nowhere.

I am terrified of getting on meds, and my wife (a doctor) is also against them.

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Sounds like you have an intuitive read on the situation and maybe needed a bit of backup? My ADHD is bad enough that I barely graduated high school, and I'm totally sold on medication as a tool, but in this case it sounds like a hammer looking for nails.
Before my diagnosis, ADHD was my kryptonite. I thought I was lazy, I couldn’t accomplish the things I needed to. It pushed me into depression and was quite hard.

After my diagnosis, I felt like ADHD became my superpower. I know how to play to my strengths rather than my weaknesses. I know if I have an interest in something, I can dive into it and produce great output, and for tasks that need doing which aren’t interesting, I have coping mechanisms and medication if necessary.

How did you get your diagnosis? Every time I read the symptoms it sounds like me, but it also kinda sounds like everybody. What's the signal that it's a pathology worthy of treatment?
Not the person you are replying to, but generally speaking I look at getting a diagnosis (for most mental health problems) like so:

Do these symptoms cause me struggle with my everyday life? Are things that normal people do all the time oddly difficult for me to complete?

If so, go get a diagnosis. Everyone struggles with procrastination to an extent, but if you try to sit down and try to start the work and just CANNOT emotionally bring yourself to do the work or get your brain to engage, then it's probably something more than just normal procrastination. If you are frustrated with your inability to remain focused and complete things on time that are just not inherently interesting to you, recognize that most people don't struggle like that. It's not a discipline problem it's an emotional regulation problem which is common of ADHD.

> if you try to sit down and try to start the work and just CANNOT emotionally bring yourself to do the work or get your brain to engage, then it's probably something more than just normal procrastination

I've had so many problems with this in high school and college, it's unreal. I've only started to fully comprehend my problems with anxiety this past semester but reading all of this makes me wonder if there's something more to it than just that.

If it's really that hard to get engaged into something that you aren't innately interested in but that you know you "should" do, I would seek an ADHD diagnosis. It's a pretty big symptom. Sometimes it really is not possible and even if it is it's extremely difficult and you feel dumb for it (but obviously you shouldn't, it's not your fault). It's like your mind throwing a tantrum and refusing to engage with the work at all.
This is my struggle. But also, nobody likes to focus on something uninteresting. What's the difference between ADHD and just not wanting to do it?
The difference is really not being able to focus if it's not interesting. Your brain will constantly turn to other stimulation if it's not getting it from the current task. Sometimes you might be able to do it, and other times you won't. That's one of the most frustrating parts of ADHD. You feel like you've done it before, so why can't you do it now? "Normal" people can still focus (or get started) even if something is not interesting, they just have to start.

Most people won't like to do uninteresting things, but the threshold for boredom is extremely low in those with ADHD so they will struggle a lot more to stay focused. It's a spectrum unfortunately, so there's no one definitive measure that says "that's definitely ADHD". To be honest, if you find yourself seriously questioning/wondering about whether or not you have ADHD it probably means you're struggling to an extent and aren't 'normal'. Otherwise, it wouldn't be something you are questioning.

Not wanting to do it and not being able to do it are two different things. To an adhd person boring tasks aren't just boring to do, they are impossible to do even if they were paid a million dollars to do it.
I call it not being able to put one foot in front of the other. You will find all kinds of distractions to try to not think about it, because to think about it is almost physically painful.
Would second this, if the though of doing the dishes is equivalent to someone shooting your dog emotionally then you have an issue. It just seems like life cannot go on to get yourself to drag yourself to the sink and start washing them. Now I do them almost every time I take a break.
I spoke to my doctor last year about this, was referred to a therapist, and was diagnosed (I’m a bit younger (32) and like you continue to grow, have a long-term stable marriage, good savings, great life. There were a lot of signs, but primarily I had trouble staying focused even for a few minutes. To have a productive morning and not get derailed, I would need to have an app like Routinery to walk me through what I needed to do step by step before work.

I decided against medication for a few reasons, but to deal with it is a daily exercise. I have to put up guardrails or I can lose hours / day with distracted activity. I find it’s tightly correlated to how much time I spend on technology.

Meditation, prayer, down time from technology (physical news paper and Economist in the mornings) all help to start the day focused. I’m considering re-arranging the house to have a room dedicated to technology and everything else in the house be low-tech, higher quality forms of recreation (books, musical instruments, board games, etc). That will, in theory, allow me to put time boundaries on how often I’m around technology. Another big thing I did was stop drinking. I did an A/B test at the start of 2020 - 2 months not drinking followed by 4 months of drinking, and by June I decided I was done. I still taste different things if my wife has one or I’m making drinks for others, but haven’t had a full drink since last June. NA beers have been great.

Books that helped me: make time, essentialism, digital minimalism, (an extreme but easy read recommended on here) - “better off”

Part of my hesitancy for medicine was that I didn’t want it rooted in self-improvement / optimization. I think there was some burn out mixed in and I was looking for the next step to optimization with medicine. I figured it would be better to fix the system rather than over-optimize for what I was doing. If I can’t naturally deal with it, then maybe I shouldn’t be running that hard.

If I get two-three hours of focus now per day it’s great.

Perfect is the enemy of the good, and I am generally happy and see no need for that much optimization. If it was really impacting my work and life, I’d reconsider medicine.

You and I share similar methods! Most of my technology is in the office, and we are surrounded by books and musical instruments. I am an artist (designer by trade, moved into technology consulting).

I definitely agree with drinking (and weed), it is very negative, and the effects last days for me.

It's helped me understand the pros and cons of an ADHD diagnosis, it good to know that you're not alone in a sea of neurotypical people. It's helpful to understand ADHD and share your learning with people who are close to you. For me and it seems like you as well, the challenge hasn't been with work and life in general but more with relationships with people closest to me - read up on RSD. It's also fun to understand all those coping mechanisms you've developed over the years. Use it as an opportunity to learn and explore.
Thank you, I will certainly look into this.
I had a neuropsych evaluation (the neurological test) in my early 20's. It confirmed my diagnosis of ADHD and dyscalculia.

If you don't believe you're negatively impacted with ADHD type symptoms, it probably won't help you. It did help me manage the 'cycle of anxiety' brought on by ADHD-induced lack of focus and procrastination.

Stimulant medications do help, I'm on Concerta which is an extended release methylphenidate (Ritalin). It is not magic. I see a therapist to help with accountability and manage the chronic anxiety as well as develop systems to help me block my time and limit distractions.

Can you all recommend any science-based books/videos/etc that one could use to improve their ADHD?
I'm a successful 33 year old adult in a career ideally suited to the way my brain works, so I was VERY skeptical about whether it would make any difference to my life to get diagnosed or go on meds. Now that I have, I can confidently say that it was a total game-changer and I wish my parents had gotten this done for me when I was a kid. It would've made so many things so much easier.

I currently only use my meds (specifinally, Vyvanse) once per week, because I don't love the side effects and I can manage fine without most of the time. On that one day per week, I do everything that my brain chemistry usually makes difficult, which is mostly paperwork and cleaning.

The difference it's made is HUGE. I went through a whole grieving process when I realized how much easier I could've had it all along. I can sit down, spend four hours doing my taxes, and then be done (and then realize the bathroom needs cleaning, and also do that), instead of sitting down, getting a snack, doing ten minutes of taxes, cuddling with the cat, starting a conversation, going on hacker news, doing ten minutes of taxes, going on hacker news, and finally finishing the taxes ten hours later at a quarter to midnight.

It's also made a huge difference to accept that some things are simply symptoms, and not signs that I'm a disorganized failure who'd too stupid to manage daily life. It's also helped to live with people who know and accept this about me, and who know that although I'm very good at managing my symptoms, sometimes things go wrong.

Yes, sometimes everyone is mildly inconvenienced because we were about to leave and now I have to go on a ten-minute WHERE IS MY WALLET tear through the house. It's fine! Sometimes, we're mildly inconvenienced because my girlfriend's insulin pumped is clogged and she needs to spend ten mins fussing with the catheter. These are things that happen when you have a chronic health condition, and no reason for anyone to get upset or berate anyone else. Accepting that has made me a much happier person.

The grieving process was intense for the first few months. It was somewhat amazing to notice the "stages" as they happened. Anger, towards my parents and my teachers and my psychiatrist, was the hardest to deal with.

But acceptance came, and it's the best I've felt in years.

Glad to see others in this thread like yourself with such similar experiences.

> I went through a whole grieving process when I realized how much easier I could've had it all along.

I was diagnosed six months ago and I have absolutely been going through the this same process. At one point I cleaned up a bunch of old boxes (some of which I'd been meaning to unpack for over a decade... yes the meds help!) and came across a folder of my old school reports. Reading through them and seeing the lifelong pattern of struggle with focus and attention that I'd just thought was normal, and that didn't have to have been that hard... I cried, a lot.

thanks for giving me some word for what i felt. it has definitely been a grieving process.
If you are dosing once a week, aren't you getting a pretty good hit of euphoria?
Does it matter? The important part is that you can manage it long term, and taking it once a week is sustainable.
> Does it matter?

I view the euphoria as an unsustainable side effect.

People can tell when you are high, and normally not for your positive attributes during those moments.

The therapeutic does you get doesn't make you "high", you get a small burst of energy similar to caffeine at most, nothing unsustainable. And since "euphoria" isn't a well defines concept you could see caffeine as causing "euphoria". Certainly seems that way when people say they can't function before they get their morning coffee.
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> I view the euphoria as an unsustainable side effect.

So?

I was diagnosed once as a kid, and again as a teenager. I was prescribed medication just as fast as I was diagnosed. In either case it hasn't helped, as it concerns my focus. In fact I quite often felt worse when I relied on these later on. What it helped was to ascertain that I do not in fact have ADHD, and to learn that the diagnosis process is a complete joke.

My issue was primarily of chronic fatigue from inadequate sleep through my teen years, informed in part by high levels of anxiety and stress at home. Conversely as a kid, diagnosis came recommended by a teacher (!) because I was "daydreaming in class" - that's it. Details of my fatigue were made aware to the psychiatrist I was sent to at the time, but perhaps because I was scheduled for focus/attention issues, it was completely ignored.

I eventually regained my focus in adulthood, after pain and trepidation, with a multi-pronged approach that included reinvigorating sleep, reducing my anxiety levels, and diet / regular exercise.

Make no mistake: this is not to proselytize that "ADHD doesn't exist". But I would put it to you that since there is a perverse incentive to diagnose it, it's diagnosed as though everything is a nail in North America. There should be more credence given to the possibility that focus issues can be symptomatic of other problems.

I also find it dubious that children can so easily be diagnosed by virtue that a long day of boring lectures and sitting still is difficult to pay attention to. This is almost ubiquitous among children, though yes, it will exacerbate things more among kids who have more of a difficulty with focus. This brings to mind the story of Gillian Lynne, choreographer for Cats, who was brought to the doctor for her fidgeting - he suggested she go to dance school where she excelled. Why is it unthinkable that certain children be allowed to flourish in more appropriate environments? Because they're an inconvenience to adults - that's all. It's not less virtuous to be a person drawn to more physical engagement with the world.

Also see: A Disease Called Childhood: Why ADHD became an American Epidemic, by Marilyn Wedge, Ph.D.